It was the summer of 1973, and I remember going to some theater event with all of the teens from my camp. The only part of the outing that I distinctly recall is that some of the older guys – my brother’s age so I didn’t know them too well – carried transistor radios toContinue reading “staying engaged”
Author Archives: jthere
same old beauty
When people ask “What are your weekend plans?” I generally have nothing much to say, no special activity or event to report. On Saturday morning we go to Shoprite with V and his bt (behavior technician) J, who is very good with V and brings terms like “tools for adulthood” to life… as something soContinue reading “same old beauty”
salt and pepper days
After 15 years of gardening I decided to call it quits for this year. Too much going on with V and I don’t have the time and energy to devote to it, although this is often the case. I buy and plant with determination and excitement for the new season and then my efforts peterContinue reading “salt and pepper days”
Savoring May
I rarely show pics of V here yet can’t resist sharing this recent photo of him with a friend at the equine therapy center where he interns once a week. So apropos of nothing here’s a sweet shot. I wrote a post I didn’t publish (that happens occasionally) because it seemed so petty in lightContinue reading “Savoring May”
hoping for love
In the book Far from the Tree (about how families accommodate children with physical, mental and social disabilities and difference) there is a section on children with multiple disabilities. A mother talks about having her adult child with complex physical and mental disabilities who went into a group home. Her son was provided adequate careContinue reading “hoping for love”
Another Move, with Anchor
B just moved to Seattle, after a good year in Portland, He’ll have more job opportunities and family there: his wonderful aunt and uncle and cousins, I’m so proud of him for forging his path, although I wish I was closer. We text and talk a lot but there’s nothing like spending time with someoneContinue reading “Another Move, with Anchor”
toward adulthood
V’s 21st birthday was in February and a lot has happened since then. As of March he has been registered with a support coordination agency that oversees all the services he will receive as an adult. We already are receiving two afternoons a week of respite and in May he will have his first overnightContinue reading “toward adulthood”
on good news
Optimist: a person who is inclined to be hopeful and to expect good outcomes. Whenever there is good news I think of my mother, who despite the odds remained an optimist throughout her life. I didn’t exactly inherit her outlook, yet I’ve found that, now especially, with so much bad news out there, I positivelyContinue reading “on good news”
Side effects
1. The 11 hour dental appointment V takes medication at night to help him go to sleep. We spent many years of sleep-deprived nights trying all sorts of alternative treatments but when it comes down to a major sleep disorder like his there is usually no getting around taking some sort of medication. After muchContinue reading “Side effects”
Portland: 3rd time a charm
Are those roses real? Are those trees really flowering in March? Was I really away this past week? Just days ago a free woman in Portland? Back home, still recharged and energized from a wonderful trip to see B. I have mostly memories as I didn’t bring much back with me beyond some local coffeeContinue reading “Portland: 3rd time a charm”